Resources

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Getting Started

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  1. Chronic Illness and Gaslighting

    Thoughts on how the concept of gaslighting plays into the spoonie experience

  2. When Doctors Don’t Know What’s Wrong

    A comprehensive article on how doctors think, with advice on getting your doctor on your side.

  3. 9 Tips for Sharing Information with Your Physician

    Fantastic advice from patient activists!

  4. The Spoon Theory

    The original spoon theory story

  5. The Pillow Fort

    A blog, shop, and Facebook group devoted to making chronic illness suck less through positivity

  6. ChronicBabe

    Fantastic advice for thriving despite chronic illness!

Tools

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  1. Daily Living Aids Wish List

    Some ridiculously cool spoonie tools here!

  2. PatientsLikeMe

    Track your symptoms & conditions and connect with similar patients

  3. Medscape

    Provider-oriented and info-rich. Google "Medscape [topic]" to get past paywall.

  4. Ask a Patient

    The Yelp of medications

Communities

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  1. Pain Palz

    A social network for people with disabilities

  2. The Pillow Fighters Club

    A positivity-only Facebook community

  3. Spoonie Reads

    A laid back book club just for spoonies

  4. Chronic Pain Anonymous

    Similar to Alcoholics Anonymous, but for chronic pain and illness!

  5. Care to the People

    A spoonie community across all major social media platforms

Help

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  1. 21 Solid Tips for Depression
  2. Small Ways to Ask for Help
  3. Dealing with Fatphobic Doctors
  4. Brené Brown: The power of vulnerability

    A really important TED talk about relationships and vulnerability.

  5. 7 Cups of Tea

    Free therapy via online chat

  6. BlahTherapy

    Free and paid therapy via online chat

Specialized Resources

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  1. Hobbies Masterpost

    A list of cool hobbies to pick up, with links to resources

  2. Spoonie Work From Home Master Post

    A list of ways to make money from home

  3. Spoons and Stripes

    A blog on spoonie fitness, with a focus on hypermobility issues

  4. No More Ramen

    Easy and inexpensive cooking

  5. The Celiac Saga

    A community for teens recently diagnosed with Celiac Disease

  6. Disability and Sexuality Resources

    An exhaustive list of links to useful articles

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