Thoughts on how the concept of gaslighting plays into the spoonie experience
A comprehensive article on how doctors think, with advice on getting your doctor on your side.
Fantastic advice from patient activists!
The original spoon theory story
A blog, shop, and Facebook group devoted to making chronic illness suck less through positivity
Fantastic advice for thriving despite chronic illness!
Some ridiculously cool spoonie tools here!
Track your symptoms & conditions and connect with similar patients
Provider-oriented and info-rich. Google "Medscape [topic]" to get past paywall.
The Yelp of medications
A social network for people with disabilities
A positivity-only Facebook community
A laid back book club just for spoonies
Similar to Alcoholics Anonymous, but for chronic pain and illness!
A spoonie community across all major social media platforms
A really important TED talk about relationships and vulnerability.
Free therapy via online chat
Free and paid therapy via online chat
A list of cool hobbies to pick up, with links to resources
A list of ways to make money from home
A blog on spoonie fitness, with a focus on hypermobility issues
Easy and inexpensive cooking
A community for teens recently diagnosed with Celiac Disease
An exhaustive list of links to useful articles
Resources
Getting Started
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Chronic Illness and Gaslighting
blog.spoonieliving.com
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When Doctors Don’t Know What’s Wrong
happinessinthisworld.com
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9 Tips for Sharing Information with Your Physician
medivizor.com
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The Spoon Theory
butyoudontlooksick.com
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The Pillow Fort
thepillowfort.co.uk
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ChronicBabe
chronicbabe.com
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8 more
Getting StartedThoughts on how the concept of gaslighting plays into the spoonie experience
A comprehensive article on how doctors think, with advice on getting your doctor on your side.
Fantastic advice from patient activists!
The original spoon theory story
A blog, shop, and Facebook group devoted to making chronic illness suck less through positivity
Fantastic advice for thriving despite chronic illness!
Tools
-
Daily Living Aids Wish List
whentaniatalks.com
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PatientsLikeMe
patientslikeme.com
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Medscape
medscape.com
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Ask a Patient
askapatient.com
ToolsSome ridiculously cool spoonie tools here!
Track your symptoms & conditions and connect with similar patients
Provider-oriented and info-rich. Google "Medscape [topic]" to get past paywall.
The Yelp of medications
Communities
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Pain Palz
painpalz.com
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The Pillow Fighters Club
thepillowfort.co.uk
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Spoonie Reads
goodreads.com
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Chronic Pain Anonymous
chronicpainanonymous.org
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Care to the People
caretothepeople.com
CommunitiesA social network for people with disabilities
A positivity-only Facebook community
A laid back book club just for spoonies
Similar to Alcoholics Anonymous, but for chronic pain and illness!
A spoonie community across all major social media platforms
Help
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21 Solid Tips for Depression
diycouturier.com
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Small Ways to Ask for Help
blog.spoonieliving.com
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Dealing with Fatphobic Doctors
blog.spoonieliving.com
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Brené Brown: The power of vulnerability
ted.com
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7 Cups of Tea
7cups.com
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BlahTherapy
blahtherapy.com
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2 more
HelpA really important TED talk about relationships and vulnerability.
Free therapy via online chat
Free and paid therapy via online chat
Specialized Resources
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Hobbies Masterpost
spoonieproblems.tumblr.com
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Spoonie Work From Home Master Post
hollysuzanne.tumblr.com
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Spoons and Stripes
spoonsandstripes.tumblr.com
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No More Ramen
no-more-ramen.tumblr.com
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The Celiac Saga
theceliacsaga.com
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Disability and Sexuality Resources
incurable-hippie.blogspot.ca
Specialized ResourcesA list of cool hobbies to pick up, with links to resources
A list of ways to make money from home
A blog on spoonie fitness, with a focus on hypermobility issues
Easy and inexpensive cooking
A community for teens recently diagnosed with Celiac Disease
An exhaustive list of links to useful articles