Thoughts on how the concept of gaslighting plays into the spoonie experience
A comprehensive article on how doctors think, with advice on getting your doctor on your side.
Fantastic advice from patient activists!
The original spoon theory story
A blog, shop, and Facebook group devoted to making chronic illness suck less through positivity
Fantastic advice for thriving despite chronic illness!
Some ridiculously cool spoonie tools here!
Track your symptoms & conditions and connect with similar patients
Provider-oriented and info-rich. Google "Medscape [topic]" to get past paywall.
The Yelp of medications
A social network for people with disabilities
A positivity-only Facebook community
A laid back book club just for spoonies
Similar to Alcoholics Anonymous, but for chronic pain and illness!
A spoonie community across all major social media platforms
A really important TED talk about relationships and vulnerability.
Free therapy via online chat
Free and paid therapy via online chat
A list of cool hobbies to pick up, with links to resources
A list of ways to make money from home
A blog on spoonie fitness, with a focus on hypermobility issues
Easy and inexpensive cooking
A community for teens recently diagnosed with Celiac Disease
An exhaustive list of links to useful articles
Resources
Getting Started
Thoughts on how the concept of gaslighting plays into the spoonie experience
A comprehensive article on how doctors think, with advice on getting your doctor on your side.
Fantastic advice from patient activists!
The original spoon theory story
A blog, shop, and Facebook group devoted to making chronic illness suck less through positivity
Fantastic advice for thriving despite chronic illness!
Tools
Some ridiculously cool spoonie tools here!
Track your symptoms & conditions and connect with similar patients
Provider-oriented and info-rich. Google "Medscape [topic]" to get past paywall.
The Yelp of medications
Communities
A social network for people with disabilities
A positivity-only Facebook community
A laid back book club just for spoonies
Similar to Alcoholics Anonymous, but for chronic pain and illness!
A spoonie community across all major social media platforms
Help
A really important TED talk about relationships and vulnerability.
Free therapy via online chat
Free and paid therapy via online chat
Specialized Resources
A list of cool hobbies to pick up, with links to resources
A list of ways to make money from home
A blog on spoonie fitness, with a focus on hypermobility issues
Easy and inexpensive cooking
A community for teens recently diagnosed with Celiac Disease
An exhaustive list of links to useful articles